About Us

                In March 2000, our first daughter Alyssa was born and she brought us so much joy.  We knew from that moment that we were going to have more children.   Before even leaving the hospital with Alyssa, Chuck had already decided on a name if we were to have another daughter.  Our biggest dilemma was how far apart we wanted our kids to be.  I said 3 years and Chuck said 2, so we compromised and were going for between 2 ½ and 3 years.   Well, you can probably just imagine our excitement when we were pregnant with our second child.            

                At first, we had no worries about the pregnancy.  We were both young and healthy and took decent care of ourselves.  We were happy and enjoying the fact we were going to have another baby.  Because of some confusion, I had an ultrasound early at 18 weeks and found out she was a little girl.  I wanted to cry when they told me she was a little girl. It was all of those emotions and hormones.  I loved the little girl I had and was excited that she was going to have a sister.  Although I would have been happy with a boy, too.  Still, there wasn’t anything to be concerned with.   They wanted to do another ultrasound on my next appointment to get a better look at the heart because one of the chambers was not that visible.  No big deal.     

                Six weeks later, I finally had my ultrasound and the ultrasound tech was good because I didn’t notice a thing wrong.   After sitting in the exam room for about an hour, I was starting to get irritated when in comes my doctor.  We did my normal OB exam and then he said he wanted to see me in his office, so I asked if something was wrong and, of course, he saw something on the ultrasound that he needed to discuss with me.   I was never prepared for what he told me.  Olivia had a congenital diaphragmatic hernia.  He went into what it was and what they do for it.  I also found out the reason I had waited so long in the exam room was because the doctor’s office was working on checking into my insurance and who treats babies with CDH because I would need to continue my OB appointments with a high risk OB. 

                Wow, what devastating news.  I couldn’t even tell Chuck.  I had to have the doctor re-explain everything to him.  The excitement of pregnancy was replaced with uncertainty and followed by many, many doctor’s appointments.  The birth defect that Olivia was faced with has a 50% mortality rate.  Olivia was given less than a 10% chance of surviving.  We knew we were faced with the possibility that soon after birth Olivia may die.  We had hoped though that she would be one of the 50% that survives, that the doctors were wrong. ..

                Olivia’s life and death taught us so much.  She taught us to have hope and faith when all seemed gone.  She taught us about life, love, loss and pain.  She taught us about compassion and empathy.  She made us realize that when you are passionate about something to grab on to it and not let it pass you by.  We believe we were chosen to be Olivia’s parents for a reason, a purpose.  Right now that purpose is the Olivia Raine Foundation.  Is that our ultimate purpose?  We don’t know, but we will continue to search for any possible reason we were given a beautiful daughter for only 20 short days.

                Olivia will live in our hearts and minds FOREVER!